I view all of my children as “special.” They each have their own unique personality,
strengths, likes and dislikes. I have so
appreciated over the years how their teachers, coaches, and other adults in their
life have challenged them broadly, but also catered to them personally.
My
youngest child is about to embark on the adventure of “formal education.” He has been involved with Early Intervention
and a preschool that really catered to his personal needs. Beginning Monday, however, he will officially
join a class of 20-ish other kindergartners in our neighborhood public school. Some of his needs are “special,” too, but in a
different way than our other children.
He struggles with sensory processing disorder,
hyperactivity as well as the life-long effects from his birth mother’s alcoholic
drinking while pregnant with him. While
he has several factors to overcome just being a 5 year old boy in school, he
will also need to learn how to manage in a classroom that is full of multiple
sensory distractions and instructions that his brain may take longer to fully
process and apply.
But he
is still a child, regardless of the specifications of why he has “special
needs.” And he longs to be loved and
accepted for who he is.
Yesterday,
I watched him struggle through his first ever flag football practice. Out of all our children, he is the one with a
“football build,” and when he wants to, he can be incredibly fast! Given time, patience and a variety of ways of
teaching him the fundamentals of football, I think he could become a great
player.
Yesterday,
his primary coaches were unable to make it to the first practice, so he had two “stand-in coaches.” They were very nice
and clearly loved football. But they were unprepared to meet the needs of my sensory-challenged little player.
There
have been several moments throughout his life where I have seen up-close the
effects of his birth mother’s choices during her pregnancy with him. Yesterday was one of those monumental days. It got me thinking about not only his special
needs, but also the needs of other children in his situation or one like it.
In
order to help me process the thoughts and feelings I had while watching my son
struggle to participate in this football practice with his peers, I wrote a letter that could be for any of his coaches, teachers or other adult
mentors. The letter is written from what
I imagine would be my son’s perspective, could he verbalize these thoughts,
feelings and observations. While the letter is specific to my child, it really
could apply to a broad spectrum of children…
Dear
Coach,
I had a
lot of fun at my practice yesterday! I
loved playing with all my new friends.
But did you notice that some things were really hard for me?
To
begin with, I had never met you before and then you kept telling me what I
needed to do. It is hard for me to
follow multiple-step directions and everything you had us do was like that.
Everything
was new for me and I really needed some time to take it all in. But you didn't give us any time, you just
started the practice. The field was new
to me. And I really didn't understand
what all the lines were for and which one you wanted me to run to. Once I finally figured out where you wanted
me to run, you decided to have me run somewhere else!
I only
knew one of my teammates before the practice, so I had to adjust to all new
people. And while everyone else seemed
just fine getting on with the practice, I was distracted by so many
things. I was wearing cleats for the
first time and that felt really funny. I
liked them, but I needed some time to learn how to run in them.
And
that mouth guard…I don’t know how anyone can put that in their mouth and not
keep taking it out. It felt weird. It was hard to talk with it in my mouth. All those times you told me to put it back in
and quit playing with it – I tried, but I just couldn’t ignore it in my mouth!
Whenever
you had us sit on the grass, I had trouble sitting still. The sun was in my eyes and I couldn’t see
very well. The grass was dry and pokey
and kept hurting my leg. There were
gnats flying around me and I had trouble ignoring them. And it was hot. Really hot. And I was sweating. Really sweating. My face was all wet from it and it kept
running down my cheeks and that bothered me, too.
And we
did so much running. Back and forth,
again and again. I could not get the
point of it all. And I was hot and
thirsty. So thirsty. But you would not let us go to our Mommy and
get a drink every time we needed it. You
said, “You will be fine, just wait a few more minutes. “ But I wasn’t fine! My mouth was so dry and it was hard to think
of anything else!
Do you remember
the time I told you and the team, “I have a great idea! Let’s just stop all
this running and go to my house and watch TV together!” When I said that, I was not trying to be
disrespectful, just trying to make a suggestion for how things could be more
fun.
You
kept making suggestions, too, like telling me to watch the ball, hold it tight,
run faster, concentrate more, stand up and on and on and on. You spent a lot of
time telling me what to do and correcting me.
I don’t even remember you telling me I did a good job with anything!
I just felt like it might have been a good idea for
us all to do something more fun together!
And when I said, “Can I just go home now and get in my pool,” I wasn't
trying to be mean or interrupt you. I
was just hot and tired. And I love to
feel the cool water on me when I am feeling so sweaty. I wasn't trying to tell you I did not want to
be on the team, I just needed a break at that moment.
And do you remember that last
drill, the one where you said, “Okay boys, this is our last running
practice. If you want to be a
participating member of this team, go run over to the hill and back as fast as
you can. If you don’t want to, well
then, don’t.” I was so relieved that you
gave us the option to run again or not run.
I realize none of the other boys sat like I did. And you seemed irritated by me (kind of like
you did for most of the practice). But
by then, I was just super tired and hot!
So, well, I just wanted to let you
know that I had a fun first practice, even though I was really hot and
thirsty. I hope you like me. I know I have some “special needs,” but to be
honest, a lot of times I don’t feel very special. And if you don’t really know me, you
will probably think I am just a trouble maker.
I hope next practice you will realize how hard I am trying and you will
find me doing something right!
Love,
Your 5 Year Old “Special Needs” Team Player
Wow Teresa! You really captured what he was thinking and feeling. Brings tears to my eyes...."I know I have special needs but to be honest a lot of times I don't feel very special." I pray while this world may not affirm his significance, he holds on to the truth that he is one of God's favorites!
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